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Kidney Soul

A space to grow, learn, and become empowered.

About This Website

This blog started as a project to process this journey. I am beginning this journey with my husband. He was diagnosed with Stage 5 kidney disease at the age of 28 years old. He was otherwise completely healthy, and this has come as a complete shock to my family and his friends. He was diagnosed with Berger's Disease (IGaN). It was most likely triggered by a viral infection. We suspect this virus was Covid-19.

I hope this blog will provide hope and empowerment. It should offer resources and support for other families experiencing the same journey. Whether you’re starting at stage one or five, you are welcome in this space.

I am located in British Columbia. I will post Canadian/BC specific resources and tips from time to time. These posts could include mental health, physical health, or even system navigation tips and tricks for Kidney Disease.

Thank you for visiting!

Berger's disease CKD Dialysis donate life donate organ faith family health iga IgA nephropathy kidney kidney-transplant Kidney Disease kidney health kidneys life LivingDonation love lung Mental Health news organ-donation organ-transplant OrganDonor PD PDDialysis peritoneal dialysis Renal Diet Renal failure sodium support transplant

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I need you like the flowers need the rain. <3 Donate to save lives.

Register as an organ donor today! You can be a living kidney donor and give the gift of life.

A special thank you to BC Renal for their support for families and kidney patients.

Educational information available here.

If you are from the United States you can click here to learn more about organ donation.

If you would like to support our journey.

We also appreciate thoughts and prayers. Thank you for stopping by!

Tag: Renal failure

Dialysis, General Update, Mental Health

Update on Tyler’s Journey: Living Donor Advocacy

Tyler’s Current Status I wanted to give a quick update on Tyler’s health. Right now, things are stable. Tyler is … Continue reading Update on Tyler’s Journey: Living Donor Advocacy

Understanding Kidney Transplant Options in BC
General Update, Social Work Support

Understanding Kidney Transplant Options in BC

Recently we attended a pre-transplant meeting to start the process and began exploring our transplant options. For educational purposes I … Continue reading Understanding Kidney Transplant Options in BC

Navigating Home Dialysis: A Personal Journey
Uncategorized

Navigating Home Dialysis: A Personal Journey

So many updates. I am not sure where to start. But they are great updates. Dialysis progress – This week … Continue reading Navigating Home Dialysis: A Personal Journey

Navigating Kidney Disease: Our Journey with IGA
Dialysis, General Update, Mental Health

Navigating Kidney Disease: Our Journey with IGA

It has been a lot over the last month and time feels like a blur. We started PD. I am … Continue reading Navigating Kidney Disease: Our Journey with IGA

Navigating Dialysis: Insights on Outpatient Procedures and Home Care
Dialysis, General Update

Navigating Dialysis: Insights on Outpatient Procedures and Home Care

Today we completed the Periodontal Dialysis port insertion. It was an outpatient procedure and probably took around an hour while … Continue reading Navigating Dialysis: Insights on Outpatient Procedures and Home Care

Dialysis, General Update

Surgery Update: Transitioning to Peritoneal Dialysis

The best way to update everyone is through the blog. I do not have the emotional or mental bandwidth to … Continue reading Surgery Update: Transitioning to Peritoneal Dialysis

Living for Others: A Call to Donate Life
General Update

Living for Others: A Call to Donate Life

Once upon a time I knew an amazing soul named Leah. Leah and I became great friends and met online … Continue reading Living for Others: A Call to Donate Life

Diet

Managing Sodium Intake in Kidney Disease

One of the hardest parts of this journey, I am told, is the diet changes. People who struggle with kidney … Continue reading Managing Sodium Intake in Kidney Disease

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